Tag Archives: disabled artist

My DSPS story: the boy at the mouth of the cave.

Night sky by Heather Hunsinger 2020

Night sky by Heather Hunsinger 2020

I am disabled across many axes. One of the most painful is my circadian rhythm disorder, Delayed Sleep Phase Syndrome or Delayed Sleep Phase Disorder.

It has caused me torment most of my life. Going to school, going to work, has been a nightmare from babyhood. I felt lazy, defective and also physically ill every time I had to get up before noon. Since that was most days of my life up to 2011, we’re talking about feeling like you have severe jet lag for about 7,000 days. Plus, shame.

I was nauseous and sick with pain one 10am at work at a startup in 2011; my nice colleague said a cheery “Good morning!” and I suddenly intuited that there was something physically different between us. I googled “can’t wake up in the morning” and instantly learned that there was something real that was different about me. I found a sleep doctor at Stanford, I kept a sleep log, I did a sleep study and got diagnosed; I was laid off my job and got a sweet year of unemployment.

I wrote this story after reading something about how DSPS, perhaps caused by a clock-gene mutation, may have served prehistoric cultures by providing alert night guardians.

I was so lucky to have a mother who was compassionate and accepting of my different clock; this is a story for parents like her to read to their little babies who are up at 1am.

Let me tell you a story.

Long ago, long ago before wheels and fields and lightbulbs, a boy sat in the mouth of a cave. Inside the cave slept everyone he loved. He sat at the mouth of the cave and added wood to the fire, and all night long the night spread out around him, vast and velvet and indeed, full of stars. He looked at the constellations in their moonset houses and he breathed in the stillness of that hour after midnight when the air stills and the night is suddenly warm. He ate from the bowl of food his mother had given him before she went to sleep.

And at dawn, he went inside the cave and shook his cousin or his brother’s shoulder, and slipped into the warm furs where they had slept while he kept watch.

Once, during the spring migration, they camped beside a band whose wise woman was a person like him. For those few nights, after the young women had brought them gourds of stew and baskets of berries and prized bits of honeycomb wrapped in leaves and then gone to bed, he sat up with the wise woman by the fire. They talked in the dark about the nighttime things that only they knew – the sound of the night hunters dragging home their prey, the sheets of ice on the lake cracking in the spring, the color of false dawn.

She told him about her oldest daughter, who was taken from the cave of the tribe she had joined one winter night by a saber-tooth. That tribe had no Night Person, and the watchman had fallen asleep and let the fire go out.

He told her about the night, during the Second Winter of No Game, when a cave lion with a dull coat and sharp ribs came softly softly to the mouth of the cave, and he flung a brand in its face and it bolted, and the sleepers never knew.

She told him about her youngest daughter, who was born a Night Person, and showed him the fine dowry of furs and beads and bowls and hand axes from the fortunate Southern band she joined.

And she told him about the meteor shower she watched alone as a young woman; she shook her husband’s shoulder, but he never woke.

The boy lived a long life, and he marked the courses of the stars in ochre on the cave walls, and when he died they wrapped him in the skins of night hunters.

*Beautiful photograph of the desert sky by Heather Hunsinger, 2020, used with permission. Visit Heather’s art site or follow Heather on Instagram for gorgeous nature photos, including an amazing series on raptors.

Another amazing evening of Disabilitease!

Perfect Tyler for Disabilitease by Suzanne Forbes April 11 2021This is Perfect Tyler performing for Disabilitease!

What an incredible, iconic wheelchair burlesque piece! I looooove Perfect Tyler, find and follow them here! This performance was for the November 2020 edition of Disabilitease.

Little Peaches

Little Peaches is an international performer and producer and DisabiliTease is her baby. Several years ago, a serious flare up of several of her medical conditions left her unable to dance. Being the stubborn renegade stripper that she is, Little Peaches grabbed her wheelchair and re-trained herself to dance with wheels!

About booking performers with disabilities, she says:

Performers with disabilities are often overlooked for shows because they may need a little extra help when it comes to making the show accessible for them. That may be having wheelchair or walking aid access, assistance with travel, assistance to and from the stage to aid with visual impairments, BSL interpreters or a quiet space to retreat to if they are feeling overwhelmed. These little things can be surprisingly easy to put into place but more often than not, they aren’t.

Arielle Firecracker is the other half of the Disabilitease team!

Arielle is a gorgeous tattooed bombshell who burns up the stage! Here she is photographed by Veronika Marx.

Arielle Firecracker by Veronika Marx 2020

Arielle Firecracker by Veronika Marx 2020

I’m working on more drawings from this event.

Due to my own disability, it’s going slower than usual, but I will get them up eventually 🙂

I am incredibly grateful to my Patreon Patrons, whose monthly financial support makes it possible for me work safely at home.

As usual these drawings are licensed Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0) for all to share and enjoy!

In addition, I release the copyright on each drawing to the performer shown and they may use the drawings for their own profit and pleeeasssure in any way they choose.