Tag Archives: disabled artist

A Trip to Helios.

Waiting Room at Helios by Suzanne Forbes August 17 2021We got out of the taxi at the automated parking gate, and the first thing I did was flop down on the grass.

Just outside the city in the North-East, Helios Klinikum Berlin-Buch is sited amid patches of woods, sweet meadows and pretty village streets. We had taken a cab from our home in the Far West on this beautiful summer morning, because using mass transit like normal Berliners would have involved bus, S-Bahn, tram and bus again. Plus the risk of exposure to thousands of people.

I had badly hoped to see some Pferde, but although I saw some paddocks, no horses were out. Nobody was out. In our hour-long cab ride across Berlin and then out into the suburbs, the city appeared deserted. It’s normal for Berlin to be deserted in August, when all the locals go on holiday, but this was different. The lack of British tourists was profound. The only place we saw people was Potsdamer Platz, where a few Americans were photographing the horrible architecture.

The village streets were empty but at Helios hospital, things were moving. There was the usual German hospital complex mix: beautiful old buildings, flat glassy new ones, and doctors and nurses on their smoke breaks outside. As the cab rolled away from the Helios grounds, I took off my face shield, my prescription swim goggles and my outer FFP3 mask, and lay back on the grass. Dandelions, daisies, burdock, gentian, goldenrod, Queen Anne’s lace, all the flowers of high summer in Maine are here in Germany too, and it was so good to see them and smell the cut hay of nearby fields.

The very rainy summer and cool August has left the countryside fluorescently green and vital, everything alive and bright and waving. The mix of fields and town and woods and rivers here is so much like Connecticut, where my mother’s family settled on arriving from Scotland, or Wisconsin, where I spent summers with my godmother. Germany is so fucking beautiful, and feels so much like home, which is always a little confusing.

My husband stood nervously waiting for me, while I looked at the blue sky and thought about the last planes leaving Afghanistan and the pregnant ten year old girls in the Tigray and the burnt islands in Greece. I tried, briefly, to make sense of the German countryside, its buried shell casings and its bucolic splendor. Then I sanitized my hands and my goggles and put everything back on except the face shield (which I use primarily as a windblock in taxis now that we have our goggles) and we walked to the biggest building and went inside.

Of course we had to walk around endless hallways and down long galleries full of unmasked children and chin-maskers while we tried to figure out where we were and how to understand the signs, but the place was well-ventilated, the day was temperate, and we have good PPE. I would have liked a wheelchair, but the walking was bearable. We found an infodesk, and D. got yelled at for wanting to go to a place that was for children. Then, after he explained that he had what the children had, he got yelled at for having the wrong form.

Then we were given permission to go ahead anyway, as is customary if you accept the yelling, and we went to the Warteraum for Kinderchirugie.detail Waiting Room at Helios by Suzanne Forbes August 17 2021

“Du bist meine Muffin,” I said to my husband.

It was the first time I said it in German. I was terrified about the doctor. I had had three nights of endless recurring nightmares, the bad one where we’re trapped in the US and can’t get home to Germany. I was so afraid the doctor would say the same thing all the other American and German doctors have said over the eleven years we’ve been together: “Your condition shouldn’t be causing you pain. Are you sure it’s really happening?”

Medical gaslighting and patient invalidation is a core trauma of disability and while I have had more than D., he has had his share the last few years. I was afraid we were braving the Delta variant and his trauma around hospitals to be told “You’re too old, why didn’t they treat this sooner” or “We can’t help you, the insurance doesn’t cover it” or “You should just try not to eat fried foods”.

We waited about an hour, with a relaxed tween boy seated across from us and then gone, and the occasional screaming, crying, coughing children and parents going by. The single oversized blue LEGO on the play table really was the only toy visible, though there was an empty dollhouse and kid’s books on the shelf.

And then we were called in to see the specialist, who is the protégé of the world-renowned doctor who we were originally going to see before the Covid-19 pandemic started and he retired.

The doctor was the real deal!

Finally, someone who truly knew about my husband’s condition and had no shaming commentary about how nowadays this is treated when someone is a child. He was immediately committed to treatment, and explained that the insurance company would argue because of D’s age, but that he could handle them. It helped, he said, that we had done everything right: seen all the specialists leading up to him, to confirm nothing else could be causing the symptoms. He believed my husband (and me, I’m generally the one who yells, “He’s suffering and he deserves relief!”) about the symptoms. He agreed that D deserved relief from this pain and limitation.

He said, “I see 300-400 patients like you per year. I know what they are experiencing is NOT A FAIRY TALE.”

(emphasis mine, imagine this sweet validation said in Germanic English.) !! WOOHOO!!

Another Big German Surgery for my cyborg hubbie next Spring, God and booster shots and pandemic willing!

I am so grateful to my Patreon Patrons, whose monthly financial support makes it possible for me to continue making art as a Covid-vulnerable disabled person. With your support, I can work from home or safely outside and keep telling the stories of Berlin.

First time drawing outside since February 28, 2020!

Outside Cafe Einstein West Berlin July 17 2021 2 by Suzanne ForbesI didn’t go very far to make these drawings!

A wonderful event from Stella Ahangi, called The Walk of Glam, always starts right near our place. The Walkers meet at Cafe Einstein on Weitzstrasse. I arrived early, not knowing that the 2pm time was the meetup time, not the start time. So I had some time to warm up and see what it was like to draw people in actual space, rather than on a screen!

Although of course I’ve produced hundreds of drawings in the last sixteen months of self-isolation, it was very different being outside, with unmasked people everywhere around me.

I was rattled, and my hand control was very limited. As you can see by the loose, wobbly lines. Which I don’t hate, honestly – my drawings can be dry, because I am so highly trained, and I like it when I can be less technical.

Outside Cafe Einstein West Berlin July 17 2021 unfinished by Suzanne ForbesThis is the drawing as it was when I got home.

I brought my signature neon green eyeball pencil case- easy to spot in dark clubs!- which was a gift from Beloved Friend-Muse-Patron Clear Menser on my 50th. First outing for the pencil case in 16 months too!

I don’t know what was going on with these three people, other than that they spent some time mocking me for my mask and face shield. The woman definitely seemed pissed. Adding whites and solid blacks at home afterwards helped capture the weird mood of the group and the way the hot, humid day kept flashing from sunny to the threat of downpour.

Outside Cafe Einstein West Berlin July 17 2021 seated men by Suzanne ForbesBy the second one I was getting the hang of three dimensional space again.

It felt so good to draw SPACE and AIR! Drawing chairs around a cafe table, drawing the space between people as they move, was like running on a track for a racehorse who’s been cooped up! Just after I finished this one, the Walk of Glam folks began to arrive.

Those drawings coming soon!

I am so grateful to my Patreon Patrons, whose monthly financial support makes it possible for me to continue making art as a Covid-vulnerable disabled person. With your support, I can work from home or safely outside and keep telling the stories of Berlin.