And the picnic in the park, and the life drawing salon in the old mansion with no elevator. Rideable, stair-climbing wheelchairs are an absolutely necessary part of the future.
Probably this one should have a cup holder for the disgusting Red Bull (tastes like carcinogenic Gummi Bears! and I always get the diet kind cause it tastes even worse!) that I like to drink when I draw at a nightclub.
Since it’s Disability Pride Month, I thought I’d share some info on my personal disability sich, at this moment.
Several loved ones have asked, what exactly is my disability deal?
I’m an out disabled person, and you can always ask me about my limitations and conditions. But that applies to me only, just this one disabled person who is me 🙂
Well, official diagnoses: Hashimoto’s disease, asthma, C-PTSD, PTSD, OCD, lifelong severe depression (in total remission the last eight years!!), a rare circadian rhythm disorder called DSPS, “medical obesity” and bum knees. Unofficial: crippling fatigue, dizziness, vertigo and a fair amount of muscular pain, caused by some kind of ME/CFS, fibromyalgia, ME or lupus. Working on that diagnosis situation.
But what really makes my daily life challenging? Dynamic Disability, a term coined by Brianne Benness on twitter. Benness is also creator of the NEISVoid, a vibrant disability community formed around the NEISVoid hashtag. You can read/hear voices from the Void on NoEndInSight.co. and support Brianne’s Void work on Patreon.
I have good days and bad days, and sometimes both in batches. On the bad days, I sleep 20 hours. On the good days, I can unload the dishwasher and load the washer, the same day.
And work on art!!!
No matter what my condition is physically, I am fine spiritually and usually pretty good mentally, in the eight years since my remission from depression began.
My Patrons on Patreon have given me a way to work and keep working in ways that are safe and manageable for me. I look forward to increased mobility and support as assistive technology develops. Fantasy wheelchair version one is here.
I’m glad to be alive and happy to be here, Disabled and Proud!
I am incredibly grateful to my Patreon Patrons, whose monthly financial support makes it possible for me to continue making art as a disabled person.