This November marks my four-year anniversary of complete remission from severe, long-term Major Depressive Disorder.
Despite the US election, despite my fear for my loved ones and my horror and grief at injustice and cruelty, I am deeply happy.
It’s not just that we moved to Berlin and have a better life. I felt better for several years before we left.
I entered remission in November 2012, thanks to my partner who got me on new health insurance, my mom who found me doctors when I didn’t have the strength, and a doctor who changed my meds fearlessly.
I can’t even understand how happy I am these days.
I’ve been happy much of the time, and deeply content, and gleeful, and terrified, and traumatized, and overwhelmed with grief, and sick with fear, and bursting, bursting with love, the last four years. I’ve spent many, many hours in the pure flow zone of creative work. I’ve been exhausted, A LOT.
What I haven’t been, for a single day, is depressed. If you have depression, you know the difference.
I haven’t had a single day when I wanted to kill myself.
Not a single day when I thought obsessively about killing myself. Not a single day when killing myself seemed like gravity, like something I was fighting every day not to be pulled into.
I haven’t had a Plan for four years. I actually almost don’t remember what it felt like to want to drink Drano or to check the windows of the car for leaks. In the last four years, there has been only one moment when I looked at the headlights of the oncoming train and felt a dizzying pull. It was two or three seconds, during the most frightening part of our move, when things seemed hopeless and like we’d have to go back to the US.
If you have long-term suicidal depression, you probably can’t imagine this.
I lived in the Bay Area for eighteen years. By the time we left, there wasn’t a single street I hadn’t driven down wanting to kill myself. I had calculated the speed I’d need to go off every embankment, through every safety rail. Every tall building and dark water had called to me. But the last two years and four months we lived there, I was indifferent to them. I had no business with them.
I tried to kill myself for the first time when I was thirteen.
Paramedics had to come for my drug overdoses twice before I was twenty-one. Near the end of my years in the Bay, in January of 2012, I was very briefly 5150’d in the ER at the Kaiser Hospital for suicidal impulse. (They were super nice and they put warm blankets around you. Definitely go there if you’re in Oakland and want to harm yourself!)
I’ve been seeing therapists since I was EIGHT YEARS OLD. I have moderate OCD, Delayed Sleep Phase Disorder, PTSD and a bunch of other stuff. Oh and I’m a recovering alcoholic and heroin addict sober 27 years.
I’ve been in in-patient treatment for chemical dependency, spent four months in a halfway house, been through the Kaiser Family program co-dependency outpatient program, been through the Kaiser outpatient program for depression, spent five years each with two therapists doing PTSD work and dozens of visits with other therapists, psychiatrists, psychologists, and doctors.
Most significant of all, I have spent decades in recovery communities and support groups of all kinds, which have been the biggest resource I have to grow and change.
I HATE being mentally ill.
I never wanted to be sick and I have fought all the diseases of the mind I suffer from fucking tooth and nail all my life. I know you have too, if you have them. I know you’re not lazy, not weak and not sorry for yourself. You are incredibly brave.
You are courageous beyond words and stronger than you should ever have had to be.
You are a superhero, in the secret identity of a person who has had to spend thousands of days on the couch with a blanket. I know you don’t want to be on the couch. I know you hate it. I believe you when you say you want to be better and that you have tried everything.
I beg you, get someone to help you try one more thing.
I would never tell you to “fight harder”. I know you’ve been fighting as hard as you possibly can your entire life. What I beg you to do is to beg someone who cares about you to help you with your life and death struggle. I didn’t have the strength, when my crisis hit its peak in summer 2012, to find new doctors.
I was exhausted by the cycle at Kaiser, where they couldn’t offer me one-on-one therapy and wouldn’t take me off the Wellbutrin/Celexa cocktail because I “wasn’t stable enough to risk it”. I was on new insurance, in the summer of 2012, thanks to the company my bf worked for including domestic partners. But I couldn’t go through the nightmare rounds of trying to find a therapist, trying to find a psychiatrist who was taking new patients, navigating the phone trees.
My mom did the phone calls for me, and it saved my life.
I went to a new psychiatrist, who I did not like at all. But he was daring (or close to retirement and just didn’t care); he stopped the Wellbutrin/Celexa cold turkey and switched me to Cymbalta. Which at the time was under patent and cost like $200 bucks a month. Lucky me, I had insurance.
He said it might take longer to kick in than I thought possible. He made me wait, showing up at his office dull-eyed or weeping quietly even though I felt totally creeped out by his old feet in their ugly sandals.
Sometimes he said, wait one more day, then call me if it’s not better. I sustained my sanity during this period by reading the excellent psychiatric medicine website CrazyMeds, where they can help you “Find the Options That Suck Less”. (Sadly, the forums are not currently active as the site owner is very sick and lacks spoons to move the site to a newer host.) Reading about other people’s dogged persistence in finding medicine for their depression helped me hang in. I read about other people who Cymbalta had worked for after longer than they wanted to wait. My mom found me a therapist, and I went back to weekly therapy. For the fourth time? The fifth? Who fucking knows. I hate therapy.
One day the meds kicked in. It was as simple as that.
I was following the oft-described “Most Effective Treatment for Depression”, combining medication and talk therapy. My therapist was warm but tough, and we did a fair amount of cognitive work.
I have no more information than that. I do know that nowadays I feel like I have a scaffolding of cognitive training that keeps me from destructive thought patterns, but I could never have stopped those patterns long enough to develop new scaffolding without the meds. I’ve been on Cymbalta, same dose, for four years. I”m fine, truly and utterly fine. And being fine is WONDERFUL. I make art, teach drawing, care for my husband and our cats.
Don’t think recovering addicts who take anti-depressants are really sober? Come at me!
I forget to take my meds constantly and always have. I have to put them in a 14-day pill dispenser and keep it on my worktable in front of me. I don’t know about you, but I never forgot to take my drug of choice. And I was a pill-freak, I totally fetishized and obsessed about pills. Here’s a picture of me on some downer pills in 1986*. You can see the difference between me then and me now, right?
The meds are totally neutral to my addictive brain, I’ve never wanted to take more of them or abuse them.
I have never been free of depression symptoms for this long in my entire life. Predictably, once my brain got better, my body fell apart. I had to have surgery for fibroids, I had terrible problems with anemia (even now, even though I’m on the cusp of menopause now), I’ve been through crazy perimenopause symptoms. I hate being hot, and I have had three years of hot flashes.
I got calcium crystals in my ear and developed Benign Positional Disorder, an illness of the inner ear that makes you feel like you have the drunk spins. I had to go on disability from work! I had to have physical therapy for vertigo at the Vertigo Clinic in Oakland! Who even heard of such a thing? Isn’t that fucking ridiculous?
And the whole time, when I would stand up and cups of blood would pour down my legs, when all I could do was lie on the couch and hold on, I was fine. I was grateful, actually, and content. I wasn’t in pain and I was just weak like a Victorian invalid. I could embroider, I could watch Supernatural on Netflix, I could go to my half-time marketing job most of the time. I was making beautiful things like this bead-embroidered corset with every ounce of strength I had. Just not being depressed was such a delicious, rapturous, heavenly feeling, I didn’t care about anything else.
Not being depressed feels exactly like being on heroin when you are depressed.
They told me in treatment in 1989 that I had been self-medicating as best I could for the variety of symptoms I had, since I was thirteen. Now that I’ve been in remission from depression for four years, the longest period since I was seven, I have a glimpse of what life is like for people who don’t have depression.
It doesn’t mean my other symptoms went away. Actually, this summer I had totally insane PTSD symptoms. Nightmares where I kicked my husband awake or kicked myself out of bed fighting off dream attackers. Intrusive flashbacks. Obsessive thoughts. But it didn’t depress me or make me want to die- it just hurt, so I cried.
Life hurts, life is scary, sometimes I cry.
The horrible results of the US election wiped both me and my husband out; we average 14 to 18 hours of sleep in our house. My fatigue problems have cycled back. When I wake up, when I’m strong enough to sit up, I run to the work table or easel and work on art. My head is absolutely full of ideas and visions and creative projects, and I do what I can of them, as I can.
My heart is full of love. I love our life, our home, our city. I cherish my loved ones. I thrill to the cuteness of our cats, to the sound of rain, to the taste of ice cream. I am truly, truly not depressed, and it is amazing. You can get better.
You can be helped. Things can change. I promise.
RAINN’s links for recovering from sexual violence.
The National Institute of Mental Health. Links to clinical studies, info on ECT– hey, I was desperate enough to try anything, and if you’re reading this, you might be too. Suicide Prevention. Hotlines saved my life so many times. If you don’t like the person you get or they don’t feel safe, hang up and call back to get someone else.
National Suicide Prevention Lifeline.
The NHS resource page, if you’re in the UK.
Rob Delaney’s amazing post on depression and getting help.
Allie Brosh on depression. Her experience of depression differs from mine, but this powerful and beautiful work of art seems to help many depressives feel understood and to help people understand depression.
* I believe the photographer who took this was named David Selig, a guy who lived in the East Village in the 80s. He took some devastating, beautifully honest photographs of me.